In an effort to ensure everyone is receiving accurate and timely health information from their doctor, the American Medical Association (AMA) is calling for more transparency about who is collecting health information.
In its latest proposal, the AMA says it is concerned about a lack of transparency and a “culture of secrecy” surrounding the sharing of health information between health care providers and patients.
AMA President Dr. David Cutler called on the federal government to require hospitals, doctors and other health care professionals to have a “public-facing policy” on data sharing.
The AMA’s new position comes as the American Society of Nephrology (ASN) is recommending that health care institutions provide information to patients about the use of certain diagnostic tests and tests that are not covered by the National Health Insurance (NHI) plan.
The ASN report says that patients can request these tests by visiting their doctor’s office, which could also include the request for a test in the form of a prescription or letter of authorization.
This can be done by email, text message, or phone call.
The APA says that information collected by health care organizations is a public health issue.
The new proposal says: If the patient does not have access to an independent third-party, or does not know the identity of the third-parties that are providing health care, then the health care provider should have the patient informed that this information is a private health care matter and that patients may not know how it was obtained or disclosed.
The American Health Care Association (AHCA) is also calling for better disclosure of information about the type of tests and procedures performed and the outcomes of these tests and operations.
“Information regarding patient outcomes should be provided on the physician’s and patient’s website, in patient-facing language, and at a level that is understandable to the patient,” the AHCA report says.
“The health care community needs to be fully aware of all health care decisions, particularly with respect to patients’ privacy, and make sure that patients have the information they need to make informed decisions about health care.”